In an effort to help spread awareness about Dandy-Walker, I have been writing our state representatives trying to get them to proclaim May Dandy-Walker Awareness Month.  I was so excited to get my hand-signed proclamation in the mail today from Indiana Gov. Mitch Daniels.  Please help spread the word and celebrate the inaugural Dandy-Walker Syndrome and Hydrocephalus Awareness Month this May!  Together we can give Dandy Kids a voice!  For more information, please visit www.dandy-walker.org. 

Here is what the proclamation reads:

State of Indiana
Executive Department
Indianapolis

PROCLAMTATION
To all to whom these presents may come, Greetings:

Whereas, The Dandy-Walker Alliance, Inc. is the only national organization which focuses on promotion the public good, education and non-partisan research that increases public awareness of the congenital birth defect known as Dandy-Walker Syndrome; and

Whereas, Dandy-Walker Syndrome is the most common congenital malformation of the cerebellum and its causes are largely unknown with between 10,000 and 40,000 people living with Dandy-Walker Syndrome in the United States; and

Whereas, The incidence of Dandy-Walker Syndrome is at least 1 case per every 25,000 to 35,000 births; and

Whereas, All Americans should learn about Dandy-Walker Syndrome and hydrocephalus and recognize the achievements of all Americans living with a disability and the important role they place in society;

Now, Therefore, I, Mitchell E. Daniels, Jr.s, Governor of the State of Indiana, do hereby proclaim May 2009 as
DANDY-WALKER SYNDROME AND Hydrocephalus AWARENESS MONTH
In the State of Indiana, and invite all citizens to duly note this occasion.

In Testimony Whereof, I hereto set my hand and cause to be affixed the Great Seal of State.  Done at the City of Indianapolis, this 27th day of March in the year of our Lord 2009 and of the Independence of the United States 232.

By the Governor:  (Signed M E Daniels Jr.)